Chemo stinks part two!

Kohlton on the horse swing at the corn maze. So sweet!  

Kohlton is doing ok right now. He has had another side effect appear. He has sores in his mouth. It's hard for him to eat/drink. At first we thought he just bit his tongue but turns out it is a side effect of chemo. Doc just called in some mouth washes to help with pain and making sure they go away. Poor guy is so pitiful. Please keep our babies in your prayers. We have a doc appt today for Kason. They will be doing blood work and may do X-rays. Will keep everyone updated. Thank you!!  We appreciate all the prayers!!

Kason at the corn maze.  He loves it out there!!  Both boys do!  I have some handsome boys!!  Thank you everyone for all the prayers!!

Chemo stinks!!

All chemo Stinks!!  Monday went by. Kohlton did great with his two chemos. He didn't eat much but overall didn't have to bad of side effects. Tuesday we got to the infusion center for his chemo and his heart rate was high. So they wanted to wait and redo his vitals 10/15 minutes later. When they did that he had a fever around 102 and his heart rate was a tiny bit higher. They ended up drawing labs for cultures and giving him some antibiotics. They still did chemo because the fever is pretty common for this chemo and his counts were good. They sent us home after. Tommy and I fought with his temp and him not being able to hold meds down till about midnight when we finally got it to drop. We then went to sleep around 1230. I set the alarm to give him more meds at 230 when I gave it to him, he instantly started getting sick and his fever was 104.1. We jumped up and headed to the car to take him to the ER. While tommy was buckling kohlton in the car, kohlton had a seizure. We called 911 and once they arrived we headed to the ER.  When we got here they have him antibiotics and IV Tylenol. He seems to be doing well right now. He is having a little difficulty with some of his motor skills, mainly mouth. He did bite his tongue during the seizure. They have decided to admit him. Not sure how long we will be here. His fever seems to spike wether he has Tylenol or not. Like we could give him Tylenol and then 1 hour later it be 104. It's crazy!  Please keep our baby in your prayers!  And us, we are pretty freaked out. And of course Kason. He is such a trooper going from place to place when we are in a rush. Tommy will head home as soon as we are admitted to get clothes and head back up here. Then I will head home to so the same and give Kason some one on one time. Thank you everyone for all you prayers!  We feel them all!!

Him at chemo today. So not feeling good!

Third week/month.

We went in to this week very nervous. We were told that Kohltons sed rate was still elevated a week ago which means inflammation somewhere. The doctor said if it were still elevated this time they would so the scans almost emergent. The sed rate elevated could mean infection or a tumor that we don't know about. Thank goodness his sed rate is normal!  Yay!!  Very happy about that good news!  Kohlton so far is not feeling great but he is still playing a bit. Please keep praying for our baby!  We are so grateful to all of you for everything you all do for our family!  Thank you all so much!!

Here's some pics from the last week or so. 

Here's today before chemo. He loves his port buddy shirt and just had to wear his super kohlton beenie. 

Waiting to launch rockets with daddy. 

Bubba and momma. Love both my boys so much!  

Stomping in puddles at church. Handsome boys. They had to wear their rain boots. Love it!

Jumping at the peanut festival. Sweet boy!

Hats from papa and TT. They love them!!

Sweet boys playing together. One of the few minutes in the day. Ha ha. 

Thank you everyone. Please keep praying for my baby and our family!  We so appreciate everything and everyone!!

We are home.

This will be short cause all we've done since we've been home is really hang out with each other. Love it!  Kohlton had chemo and antibiotics this morning before we left the hospital. He is doing pretty good. I think seeing his bubba takes his mind off of things. They love each other so much. They have missed each other too. Nurse comes tomorrow to show me how to do everything. I thought they'd show me in the hospital but now they are sending the home health care to our house. Let's pray I'm a great nurse. 😊  I will update more tomorrow. Thank you everyone for all the prayers!  Please keep them coming. We love you all!! 

Week four so far.....

We have had a busy week so far. Kohlton is not taking steroids this round of chemo per protocol. So they have warned us that the side effects might be worse. Even told us day two would almost guarantee a fever. So Monday Kohltons appetite completely went away after chemo. I had to give him some meds to help with nausea but he did pretty well over the day. Tuesday came and we were told that Kohltons sed rate in his blood work came back high, normal is 0-10 and he was at 30. So they informed us that he would be having more blood work Friday and if it was still high we would need to see the doctor. Well just like they had warned us day two, Tuesday, he got a fever. Not only did he have that he also had nausea, actually got sick, and had leg pains. We had to go to the ER for the fever and they did blood cultures, gave him antibiotics, and sent us home. He still got sick early this morning and had a fever. Once we woke up to start the day his fever was gone but he still was nauseous. They did chemo still. He started feeling not so hot during/after chemo. He started getting the chills and a fever again.  We were done with chemo and counts were good so we got to go home. As I was driving out of the parking lot the ER called me to tell me to come ASAP to the ER. They said Kohltons blood cultures grew a bacteria.  So we had to turn around and go straight there. Once we got there they did blood work and started antibiotics right away. They then moved us to his room where he will stay till he has clear blood cultures. He has an allergic reaction to one of the antibiotics, that he's had several times.  He started pulling his hair out screaming "it hurts mommy, my head hurts!"  Turns out he was having a rash move from the back of his head to his face and down his neck. He is ok now. I won't lie, I was very frightened!  Still am!  But I know God will heal him and we will be home soon.
Please keep praying for him. We are so thankful for all the love and support. And the prayers!!  We got to FaceTime Kason tonight and it was awesome. To see them interact was just amazing!  I love those boys so much!  We both do!  

Please keep our family in your prayers. Especially Kohlton!  Thank you everyone so much!  

Kohlton helping with his flush. He's such a trooper!  And a great helper!!

Snuggle before we started the day today. Love it!!

After his allergic reaction. He fell asleep and was finally at ease. Poor guy!!

Mrs Carly came to visit and drop of a bag of goodies from her and Mrs Rebecca. Thank you both so much!  This will help tremendously!  Thank you!!

Mrs Judy and Weesie surprised us with team Kohlton shirts. These will be for sale soon!  Once everything calms down and I can send/pass them out. I will also be ordering more bracelets. I didn't realize the huge amount of support we would have from all of you. We are so grateful!  and will be ordering more!  Thank you everyone!!

Almost time for week four.......

We are so happy everything has been going smoothly. We were able to visit some friends in Mississippi this past weekend. Kohlton and Kason had so much fun!  They are already asking to go back. 😊  So sweet!  

Monday marks week four, another week of chemo. Agh!  Not sure how this round will go. He won't be on steroids this go around. Good/bad feelings for that. Good means he won't have the steroid rage. Bad means he may have worse side effects. Please pray for our super hero. Thank you everyone for all your support and prayers. We are so thankful for each and every one of you!!  Thank you!!

Kohlton and Kason enjoying their video their uncle josh sent them from over seas. He is such a great uncle. Keep safe over there uncle josh!!  We love you!  

Kohltons new medical id bracelet. He loves it. Says it gives him super powers. Such a sweet boy always looking at the good in things. 😊  www.Laurenshope.com is amazing. If you need a bracelet they have all kinds and are amazing!!  

Went to the science museum when we were in Mississippi. They loved it!  

Thank you all again for all the support and prayers. Week number four we are going to smooth through!  Watch our super hero fly thru it!  😜

The lovely ladies I work with are doing a fundraiser this Sunday, September 8 from 9-2. Haircuts and a silent auction!  lots of goodies!!  Call to make an appointment. 9954040. Thank you to everyone who is involved or will be. We appreciate this more than you know. Thank you!!

Fundraisers for Super Kohlton and biopsy results!

Yay!  Biopsy results are clear of any other cancers. Never thought I'd be saying yay for my sons biopsy to say only one cancer. Crazy!  Kohlton is doing great and bubba is enjoying having him to snuggle with. They are so sweet. Kohlton is still having "steroid induced mood swings". They are awful! But we will get thru this only a few more days and they'll be completely out of his system. He has had what they call a "reversible leg paralysis". His leg stopped working for about an hour. He was screaming because he didn't understand it. So sad. I just sat and snuggled him and told him it was going to be ok. I hate that he has to go through this. He is such a trooper!  

A lot of people have been asking about any fundraisers being done. We have two going on right now. 

The first one is with Mrs Tara Mayeux. She is donating 25% of her Thirty-One sales to us. Here is the link if you'd like to purchase anything. 

https://www.mythirtyone.com/shop/catalog.aspx?eventId=E3561801&from=DIRECTLINK&verify=true

Thank you Mrs Tara for being so kind!!

And the second one is the "prayers for Kohlton" bracelets. We are asking for a donation of 5$ per bracelet. If you are local then I can meet you when they arrive and you can pay then. If you are not local and would like to purchase some we are asking that you send a check to us with a self addressed and stamped return envelope. This way we can mail them to you quickly.  You can contact me thru Facebook or email me to place orders. 

KaraDJames@gmail.com

And I can send you the address to send the check to then. 

Thank you everyone for all your love, prayers, and support through all of this. It really means so much to us!!

Thank you Mrs Linda Kelley for doing a Premier Designs jewelry fundraiser for us!  We so appreciate it!  We truly have amazing people helping us through a tough time. Thank you everyone!!

We will also be doing shirts soon. We will keep everyone updated on that as we know more. Thank you all!! Please continue to pray for my baby and all of us!