Quick update. So sorry its late!

I am so sorry for not updating sooner.   We had family visit and we were having so much fun.  Ok let’s see where did I leave off?  Oh, ok.  On Saturday the 17^th, our family came to visit.  That night Kohlton was running around like a mad man, so excited to have people over, so we put his helmet on and let him run all he wanted.  Once, he got pooped I took his helmet off and that’s when Tommy and I noticed he had stuff coming out of his biopsy spot.  Anyways, the on call doctor told us to watch for fever and redness.  Well, on Sunday we had to head to the emergency room.  Once Kohlton and I got there the doctors took a culture and did blood work.  Kohltons blood counts came back good, so a few hours later we were able to go home.  The next day was chemo and the doctor visit.  We didn’t have to do blood work because the ER had done it the day before.  Tommy met Kohlton and me at the doctor’s appointment.  Doctor Schwartz came in and told us that there were bacteria growing on the culture, so he put Kohlton on a ten day antibiotic.  Later that day Kohlton got to see himself on the news.  He kept saying its Sue!  It was so sweet!  Here is the link to watch Kohltons big day. http://www.weartv.com/newsroom/features/angels/videos/vid_248.shtml    

The rest of the week went by pretty good.  We got to have fun with Jenny and Kasey Harmon and Jayna Glover.  We had a blast.  Kohlton was a little confused by Kasey.  He has an aunt Kacey so Kasey, Jenny’s husband was called Aunt Kas the entire time he was here.  It was so cute.  He did not want them to leave!  None of us did. 

Monday the 26^th, we headed for the regular Monday.  We woke up so we could go do the blood work and have time to swim before chemo.  We started the day a little later than we had thought we would but we did have time to go swim.  At around one we left to head to his doctors appointment.  Kohlton counts were good, not as good as last week but still good.  We scheduled his scans for Friday at one.  On Monday we will find out the results of the scans.  I am praying its good results!  If it is what the doctors want to see then Monday we will start doing chemo every three weeks instead of it being weekly.  If not we will continue with the weekly visits until it is.  Thank you all so very much for all the help!  Please keep praying for all of us! 

Watch WEAR Channel three news Monday at 6pm!!

I'll start from the beginning. About three weeks ago I put something on Facebook about finding out information so I could take Kohlton to see a fire truck or school bus. He absolutely loves them!  Well, one of my friends on Facebook, Jennifer Leigh Campbell, works at Durham School Services so she went and asked her boss about letting Kohlton see a school bus or ride one.  I never would have imagined what Mrs. Angie Quinn, her boss would actually put together for Kohlton.  I don’t think Jennifer ever imagined it all either.  Ok so this is what the lovely Mrs. Angie Quinn did, actually let me just tell you about the day.  This was all done by Mrs. Angie Quinn, she coordinated all of it!  (We had notice of some of the things that were going to happen, so Uncle Randy and Aunt Angie watched Kohltons little brother, Kason for us.)

So on Thursday our first guest was Mrs. Victoria Steen, his babysitter.  She was going to come with us for all the fun.  Our next visitors were Mrs. Sue Straughn and Mr. Chris, from WEAR channel three news.  Mrs. Sue came in, introduced herself to Kohlton and then headed to the floor to play with him.  It was amazing to see how Kohlton took to her.  He kept holding her hand and showing her all of his cars.  Mr. Chris is Mrs. Sue Straughn’s camera man.  He was so good with Kohlton.  There was a moment were none of us knew what Kohlton was saying, Mr. Chris looked at us and said “he’s saying trunk guys”.  It was hilarious, only a man would have known that.  About twenty minutes later we had Kohlton’s first big surprise show up.  It was a school bus!  YAY!  Kohlton got to ride a school bus!  Mrs. Angie Quinn, Mrs. Donna Snead, and Mrs. Donna Cotton had a car seat all ready for him, along with presents, and the school bus was all decorated just for him.  They were amazing with him.  We buckled up and headed to his second big surprise.  The whole way there Kohlton got to open presents up.  He got cars, fire trucks, stickers, snacks, school buses, and so much more. Once we arrived to his second big surprise he was even more excited.  It was the Pace Fire Department.  Kohlton and I got to ride a fire truck.  Mr. Chris came and videotaped him the whole trip.  Lieutenant Murphy was the driver.  He took us all around to see two schools and so much more.  Lieutenant Murphy even turned the sirens on just for Kohlton.  It was amazing to see Kohltons face light up hearing those sirens.  I’ll admit I did cry but I recall Lieutenant Murphy said I wasn’t the only one, I could be wrong there but I think he said that.  ;-)  Once we got back to the Pace Fire Department we headed to the back where they had trained dogs for his very own little dog show.  He had a blast watching them jump thru hoops and especially giving the pups treats.  I think he believes you should give pups treats all day long.  Kohlton even got his own ribbon for being a great dog trainer.  After that the Pace Fire Department had a present for Kohlton.  As soon as Kohlton spotted it he ran and started opening it.  It was a fire truck!  It even had a remote control, a ladder, and a hose that shoots water!  How awesome is that?  While Kohlton played with that, Lieutenant Murphy presented me a check from the Pace Fire Department.  It was a very generous donation!  They gave us one thousand dollars to help us with medical bills and finances.  It is so amazing!  They also opened a benefit account for Kohlton so that anyone can donate at any time to help.  County Commissioner, Jim Williamson donated a hundred dollars to start the account donations.  I am truly amazed by all of this!  Mrs. Angie and both Mrs. Donnas grabbed Kohlton his favorite lunch for a picnic.  They got him popcorn chicken, potato logs, chicken strips, chips, and juice boxes.  He ate so much.  After all of that we headed up front where Lieutenant Del Rosario and Fire Fighter J. Morris let Kohlton spray the hose that helps put fires out.  They also showed him the ladder up high spraying water.  Kohlton loved it!  Chief Wadkins and Pat Wadkins were there the entire time helping out.  Chief Wadkins even held Kohlton and played zoo with him.  It was so sweet!  Mr. Gene Broxton set the account up for us.  They did so much.  Officer Gunn, I’m so sorry, I’m not sure if you’re Officer, Deputy, or something else.  I’m so sorry.  I’m just going to say Officer Gunn; she gave Kohlton a police hat, one for him and one for his brother and some cars.  She was there the entire time.  After that we returned to the school bus.  Kohlton got strapped in and we headed for home.  Kohlton opened more gifts on the way home.  Once we got home Mrs. Angie let Kohlton play in the driver’s seat.  She even let him open the door to the school bus.  Mrs. Angie also gave me a card from everyone.  The day was amazing!

Ok so the shout outs go to: 
*Ms. Jennifer Leigh Campbell for telling her boss
*Mrs. Angie Quinn for setting all this up including the school bus ride
*Mrs. Donna Snead and Mrs. Donna Cotton for helping her (I’m sorry I’m not sure which Mrs. Donna decorated and made the school buses for Kohlton, and which one played all day with him.)
*The Durham School Services for letting Mrs. Angie set this up
*The Pace Fire Department for the fire truck ride, fire truck toy, the beanie toy zoo, fireman hat, fire truck display, the huge monetary donation to help us through this tough time, and for setting the benefit account up (including Chief Wadkins, Pat Wadkins, Lieutenant Murphy, Lieutenant Del Rosario, Fire Fighter J. Morris, and Mr. Gene Broxton.)
*Jim Williamson, county commissioner, for the monetary donation to start the benefit account up
*The Pace Walgreens for the gift card
*The Pace Wal-Mart for most the presents and the great picnic.
*ARC Animal Hospital of Santa Rosa for sending two lovely ladies out with their three dogs out to give Kohlton his own private dog show and for giving him one of your private competition ribbons.  That means so much!  (I’m so sorry I didn’t catch your names; if you read this please tell me your names.  I’m so sorry for not getting them.)
*WEAR Channel 3 News, especially Mrs. Sue Straughn and Mr. Chris for filming the entire day and doing a story about all of this
*Officer Gunn for being involved and giving Kohlton the hats and cars to play with
*Mrs. Victoria Steen for being with us through all of this
*Uncle Randy and Aunt Angie for watching Kason so Kohlton could have this amazing day
*Dixon Brock for the decals on Kohltons helmet for his big day
*Pen Air Federal Credit Union for getting everything set up for the benefit account.

I so hope I did not forget anyone.  Please if I did please know it was a great day, Tommy and I appreciate everything you all did!  It was nice to have Kohlton out of the house and not have to worry about anything. He had a blast and so did I.  

If you would like to see footage along with the story WEAR is doing, it will be on WEAR channel 3 news, Monday at 6pm.  It will also be on Tuesday between 615 am and 645 am.  I am so overwhelmed by all of this.  I don’t think anyone will ever know how much this day has done for us.  To know so many people out there care for my little boy without even meeting him just warms my heart.  Thank you all for making this day so amazing!

Here are some pictures of the day.

Kohlton and I on the way home.  He was being crazy.

Kohlton and I after the fire truck ride.

The front of Kohltons helmet

Kohlton on the way to the fire department.

Kohlton and I.

Mrs. Vicotria and Kohlton trying to carry all his goodies in.

Kohlton and I

One of the Mrs. Donnas helping Kohlton carry more goodies.

The back of his helmet.  So cute!

Most of the crew that made this possible.  From back row left to right, and then front row left to right.  Lt. Del Rosario, the next gentlemen I'm so sorry I didn't get your name (I'm so sorry, please let me know.  I've looked on the website but cant find you), Lt. Murphy, (look real close) Pat Wadkins, Chief Wadkins, FF J Morris, Mrs. Donna, Mrs. Angie Quinn, Kohlton and I

The ladder and water spraying display.  So cool!

Kohlton driving the bus.  Not really, just playing bus driver.  Such a happy boy!

Handsome man!

Kohlton trying to figure out what the noise is.  The sirens!  I couldn't get the picture of the huge smile he got.  But hopefully WEAR did.

Chief Wadkins and Kohlton. 

Kohlton and the amazing, Mrs. Angie Quinn.

Officer Gunn, Kohlton and I.

Mrs. Donna and Kohlton playing with Kohltons new toy.

Mrs. Victoria Martin and Kohlton.  (Mike you might have to wacth out, I think Kohlton's trying to steal you wife from you!  ;-)  He loves her)

Kohlton, me, and Chief Wadkins.

Mrs. Donna, Mrs. Angie Quinn, Kohlton, and Mrs. Donna.

Mrs. Sue Straughn, Mr. Chris, Kohlton and I.

Kohlton and I.  He was being silly again.  So cute.

Kohlton and I.

Lt. Murphy and Kohlton playing with Kohltons new toy.

Thank you all for an amazing day!!

Praying......praying harder.....

We started the day off a bit late.  We decided Mrs. Tia and Kason were going to come with us.  I figured it might calm Kohlton down.  He got in the car with no problem.  Once we got to the blood work office he was not happy.  He just started crying “no hurt, no hurt”. It was so sad.  After the blood work we stopped and got breakfast at waffle house, to go of course.  Kohlton was a happy boy eating his bacon and blue berry waffle!  Mrs. Victoria and Kason stayed here while Kohlton and I went to Nemours.  Kohlton got to see his favorite doctor, Dr. Brown.  Kohlton did great at chemo, no cries or any whimper.  Tommy couldn’t be there so I was afraid Kohlton was going to cry the whole time instead he said “Oh look buddy’s juice”.  We call his port buddy and the chemo/saline/heparin is his juice.  He did awesome!  Kohlton did great today.  Now that I have told you all about the day, it’s time to tell you all about the doctors appointment.  When Dr. Brown started talking about Kohltons blood work, she usually starts off by “well his blood counts look great” and then tells us all the results.  Today was different.  As soon as she started talking I felt something was off.  Kohlton’s blood counts are not terrible but are scary.  Dr. Brown lowered his chemo to give his blood counts time to get higher.  Ok, so this is what it is.  His neutrophils level should be between 3.0-6.0 that’s 3000-6000, Kohltons is at 0.5 which means 500. Once this count gets under 0.5/500 if he gets a fever he will automatically be admitted into the hospital.  If it goes under 0.5/500, he can have very few to no visitors.  One of the top side effects of the type of chemotherapy he takes is to lower his blood counts.  So, this is very scary to me.  So, if I could ask for more prayers, please everyone pray for his counts to go back up and for this disease to go away and never come back!  Please pray for all of us.  Thank you all for everything, we really appreciate all you do!

Such a handsome boy!

Monday the 28th through Sunday the 4th.....

Monday started off kind of rough.  Kohlton did not want to leave the house at all.  He cried the whole was to the car.  I had to physically pick him up and put him in his car seat.  We got to Sacred for blood work and he cried the whole time.  It was awful.  I felt so bad for him.  We headed home and Kohlton was okay once we got there.  He got to play with his bubba and Mrs. Tia (that’s what he calls Victoria now).  At noon we head to Nemours, Tommy was able to meet us there.  Things got better once Tommy got there.  Kohlton did great through his doctors appointment.  It was Dr. Schwartz, a doctor we had not met.  We headed up to chemo and Kohlton did wonderful there.  He only fussed while they cleaned his skin.  They stuck him and gave him all of his meds without him even crying.  I am so proud of him!  He’s so tough!  We found out that the lesions on Kohltons femurs are not even showing up on the x-rays now.  YAY!  Please keep praying for all the tumors/lesions to be gone! 

Kohlton had a great week.  We got a call Thursday from Mrs. Angie; she is arranging a school bus ride for Kohlton for this Friday.  WE are super excited!  I cannot wait to see his face!  Sunday was a beautiful day and we were able to take Kohlton fishing.  We went to a catfish pond out in the boon docks.  Ha!  We all had a blast!  I was able to catch my first fish ever.  It was such a relaxing day!  We all needed it.  Please keep the prayers coming.  We all feel them but the more the better!  Thanks so much!

Aunt Heather was able to go with us.  They are so cute fishing together!

Yummy!

He was showing me where the catfish were. ;-)

Happy camper as long as he had puffs.  Ha!  So cute!

Kohtlon was yelling catfish here.  So cute!