Fundraisers for Super Kohlton and biopsy results!

Yay!  Biopsy results are clear of any other cancers. Never thought I'd be saying yay for my sons biopsy to say only one cancer. Crazy!  Kohlton is doing great and bubba is enjoying having him to snuggle with. They are so sweet. Kohlton is still having "steroid induced mood swings". They are awful! But we will get thru this only a few more days and they'll be completely out of his system. He has had what they call a "reversible leg paralysis". His leg stopped working for about an hour. He was screaming because he didn't understand it. So sad. I just sat and snuggled him and told him it was going to be ok. I hate that he has to go through this. He is such a trooper!  

A lot of people have been asking about any fundraisers being done. We have two going on right now. 

The first one is with Mrs Tara Mayeux. She is donating 25% of her Thirty-One sales to us. Here is the link if you'd like to purchase anything. 

https://www.mythirtyone.com/shop/catalog.aspx?eventId=E3561801&from=DIRECTLINK&verify=true

Thank you Mrs Tara for being so kind!!

And the second one is the "prayers for Kohlton" bracelets. We are asking for a donation of 5$ per bracelet. If you are local then I can meet you when they arrive and you can pay then. If you are not local and would like to purchase some we are asking that you send a check to us with a self addressed and stamped return envelope. This way we can mail them to you quickly.  You can contact me thru Facebook or email me to place orders. 

KaraDJames@gmail.com

And I can send you the address to send the check to then. 

Thank you everyone for all your love, prayers, and support through all of this. It really means so much to us!!

Thank you Mrs Linda Kelley for doing a Premier Designs jewelry fundraiser for us!  We so appreciate it!  We truly have amazing people helping us through a tough time. Thank you everyone!!

We will also be doing shirts soon. We will keep everyone updated on that as we know more. Thank you all!! Please continue to pray for my baby and all of us!  

Week one of 52 weeks DONE!!

Well so far everything is going good. Kohlton is such a trooper. He has had a few belly upsets and a few leg pains. He hardly ever complains though.
He does snuggle a lot with me. I enjoy that but hate that he's snuggling with me cause he doesn't feel good. He has gained 5 pounds this week. They put him on steroids to help him gain a bit. It worked. Ha ha. He is so handsome all chunky. Love my babies!  

Yesterday at chemo we found out the biopsy came back positive for LCH. That we knew was going to happen. But we were also told that they were doing further tests to make sure it wasn't another form of cancer too. There was something off on the sample they collected, that's why there is more testing. We are now sitting in limbo yet again. Please pray there is nothing else in the sample. We appreciate all the prayers, mail, and dinners being made for us. We are so thankful for all of you!!

My chunky boy. His cheeks are so squishy. Love him!

Strong boy helping nurse Sherry out. So sweet!!

A feel good moment. Taking bubba for a ride. Bubba enjoys Kohlton driving him around. So cute!  

Thank you all again!!  Will update again soon!

Day one of the new protocol.

Painting while we wait. Such a cute guy. He even found a pretty lady to keep him company. She is so super sweet!

Everything went good. We saw the doctor signed consents for treatment them headed to the infusion center. Kohlton did not like being accessed again but he did an amazing job!  He even said "that didn't even hurt at all", after they accessed him. Such a sweet boy. He is so strong!  The infusion didn't take as long as they had said. From start to finish it took about an hour. Now including doctor visit and that about 1 and 1/2 to 2 hours. Not bad considering we were told 3-6 hours. We will take that. Afterwards Kohlton had a few rough patches. They came and went pretty quickly. He had one that patch were he starting itching all over. Like crazy for about three minutes, then it was done. He had two patches were he acted like he was going to get sick but he didn't. Poor guy. Then he had another side effect related to the bathroom but overall he is feeling good. He even rode his brother around in his power wheels truck. So cute!  And now He's chowing down on some ritz crackers. He is such a strong boy!!  Thank you all for the prayers and meals and so much more!  Please keep the prayers coming!!

Waiting for his chemo with his new friend "the fire spitting dragon". Ha ha. 

Sweet boy got worn out after feeling sick. Poor guy!

After the power wheels ride. Hanging out on the tailgate. Ha ha. So cute. Kason is overly excited!!

Thank you everyone for all the prayers!  We appreciate every single one of them!!

Today was great but now Nerves are a wreck!!

Kohlton woke up this morning to birthday presents that had come in the mail for him. He was super excited!  We then went to his bday party at the ridge theatre in pace. He got to play the games with some of his friends, eat, and watch the movie Planes. He loved every bit of it. He even had the pace patriot fire department come on their fire truck to wish him a happy birthday. Such great people!!  Then we went to pick Kason up and he got to play in uncle Vic's tree house. He could have stayed there forever. Kason got to swim with daddy.  They both had so much fun. After that we came home put his power wheels together. Grandpa came to visit and brought him a present.  We finished the day off with dinner at carrabbas. Amazing day!  We are home all cleaned up and now all I can think about is what's going to happen tomorrow........

It sounds crazy to say my nerves are a wreck when it's my baby boy that is going through all of this. My nerves are a wreck though.  And then I think how selfish!  Kohltons the one who has to get poked and pricked by needles and have IVs of chemo. I'm gonna try to get some sleep tonight and pray that everything goes smooth and that Kohlton has zero side effects!!  My poor baby is soooo super strong!!  Please keep Kohlton and all of us in your prayers!  Thank you all so much!!

His amazing cake from momma bakes cakes!  It was amazing!!

Kohlton, Brody man, and Braybray all watching the movie. 

Kohlton and bubba playing around in his new truck. Sweet babies!!  I love them both soooo much!!

A bunch of planes from aunt kristie, uncle joe, kayden, Josiah, and karisa. 

Thank you everyone for spoiling our little man today!  He loves everyone of his toys. Thank you!!

On to round two....

We will be busy busy the next year.  Here's what is happening......Kohlton has tested positive for diabetes insipidus. This means the LCH is back and in a part of his pituitary gland.  He also has cradle cap on his scalp, which is actually another way LCH presents itself. So he will have another year of chemo. He will be admitted tomorrow am and then Friday am he will have an MRI, full body X-rays, a biopsy on his scalp (to be certain it's the LCH, which he has cradle cap before) and a new port put in.  Then Monday morning he will start his chemotherapy regimen. He will have chemo five days straight and then three weeks off. So basically one week chemo, three weeks off a month. He will have two chemos on Monday and then one chemo Tuesday thru Friday.  These chemos we have been told are a little more intense. Please pray for Kohlton to not get sick and for the chemo to do its job. Please pray we all stay strong thru this next year. Thank you all for all the prayers!  I'll be keeping everyone updated along the way. Thank you!!

This is Kohlton in his new super Kohlton hat. This will help keep him warm in case he needs it. Kason has a matching hat so he'll be super Kason too!!  My two super Ks. Sweet boys!!

Sad news!

Sad news everyone. Kohlton will be starting chemo soon. I will update more in just a bit. Thank you for all the prayers!!  Please continue to pray for our sweet boy and our family. We need lots and lots of prayers!!