Wednesday, August 7, 2013

On to round two....

We will be busy busy the next year.  Here's what is happening......Kohlton has tested positive for diabetes insipidus. This means the LCH is back and in a part of his pituitary gland.  He also has cradle cap on his scalp, which is actually another way LCH presents itself. So he will have another year of chemo. He will be admitted tomorrow am and then Friday am he will have an MRI, full body X-rays, a biopsy on his scalp (to be certain it's the LCH, which he has cradle cap before) and a new port put in.  Then Monday morning he will start his chemotherapy regimen. He will have chemo five days straight and then three weeks off. So basically one week chemo, three weeks off a month. He will have two chemos on Monday and then one chemo Tuesday thru Friday.  These chemos we have been told are a little more intense. Please pray for Kohlton to not get sick and for the chemo to do its job. Please pray we all stay strong thru this next year. Thank you all for all the prayers!  I'll be keeping everyone updated along the way. Thank you!!
This is Kohlton in his new super Kohlton hat. This will help keep him warm in case he needs it. Kason has a matching hat so he'll be super Kason too!!  My two super Ks. Sweet boys!!

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