We are home.

This will be short cause all we've done since we've been home is really hang out with each other. Love it!  Kohlton had chemo and antibiotics this morning before we left the hospital. He is doing pretty good. I think seeing his bubba takes his mind off of things. They love each other so much. They have missed each other too. Nurse comes tomorrow to show me how to do everything. I thought they'd show me in the hospital but now they are sending the home health care to our house. Let's pray I'm a great nurse. 😊  I will update more tomorrow. Thank you everyone for all the prayers!  Please keep them coming. We love you all!! 

Week four so far.....

We have had a busy week so far. Kohlton is not taking steroids this round of chemo per protocol. So they have warned us that the side effects might be worse. Even told us day two would almost guarantee a fever. So Monday Kohltons appetite completely went away after chemo. I had to give him some meds to help with nausea but he did pretty well over the day. Tuesday came and we were told that Kohltons sed rate in his blood work came back high, normal is 0-10 and he was at 30. So they informed us that he would be having more blood work Friday and if it was still high we would need to see the doctor. Well just like they had warned us day two, Tuesday, he got a fever. Not only did he have that he also had nausea, actually got sick, and had leg pains. We had to go to the ER for the fever and they did blood cultures, gave him antibiotics, and sent us home. He still got sick early this morning and had a fever. Once we woke up to start the day his fever was gone but he still was nauseous. They did chemo still. He started feeling not so hot during/after chemo. He started getting the chills and a fever again.  We were done with chemo and counts were good so we got to go home. As I was driving out of the parking lot the ER called me to tell me to come ASAP to the ER. They said Kohltons blood cultures grew a bacteria.  So we had to turn around and go straight there. Once we got there they did blood work and started antibiotics right away. They then moved us to his room where he will stay till he has clear blood cultures. He has an allergic reaction to one of the antibiotics, that he's had several times.  He started pulling his hair out screaming "it hurts mommy, my head hurts!"  Turns out he was having a rash move from the back of his head to his face and down his neck. He is ok now. I won't lie, I was very frightened!  Still am!  But I know God will heal him and we will be home soon.
Please keep praying for him. We are so thankful for all the love and support. And the prayers!!  We got to FaceTime Kason tonight and it was awesome. To see them interact was just amazing!  I love those boys so much!  We both do!  

Please keep our family in your prayers. Especially Kohlton!  Thank you everyone so much!  

Kohlton helping with his flush. He's such a trooper!  And a great helper!!

Snuggle before we started the day today. Love it!!

After his allergic reaction. He fell asleep and was finally at ease. Poor guy!!

Mrs Carly came to visit and drop of a bag of goodies from her and Mrs Rebecca. Thank you both so much!  This will help tremendously!  Thank you!!

Mrs Judy and Weesie surprised us with team Kohlton shirts. These will be for sale soon!  Once everything calms down and I can send/pass them out. I will also be ordering more bracelets. I didn't realize the huge amount of support we would have from all of you. We are so grateful!  and will be ordering more!  Thank you everyone!!

Almost time for week four.......

We are so happy everything has been going smoothly. We were able to visit some friends in Mississippi this past weekend. Kohlton and Kason had so much fun!  They are already asking to go back. 😊  So sweet!  

Monday marks week four, another week of chemo. Agh!  Not sure how this round will go. He won't be on steroids this go around. Good/bad feelings for that. Good means he won't have the steroid rage. Bad means he may have worse side effects. Please pray for our super hero. Thank you everyone for all your support and prayers. We are so thankful for each and every one of you!!  Thank you!!

Kohlton and Kason enjoying their video their uncle josh sent them from over seas. He is such a great uncle. Keep safe over there uncle josh!!  We love you!  

Kohltons new medical id bracelet. He loves it. Says it gives him super powers. Such a sweet boy always looking at the good in things. 😊  www.Laurenshope.com is amazing. If you need a bracelet they have all kinds and are amazing!!  

Went to the science museum when we were in Mississippi. They loved it!  

Thank you all again for all the support and prayers. Week number four we are going to smooth through!  Watch our super hero fly thru it!  😜

The lovely ladies I work with are doing a fundraiser this Sunday, September 8 from 9-2. Haircuts and a silent auction!  lots of goodies!!  Call to make an appointment. 9954040. Thank you to everyone who is involved or will be. We appreciate this more than you know. Thank you!!