Praying......praying harder.....

We started the day off a bit late.  We decided Mrs. Tia and Kason were going to come with us.  I figured it might calm Kohlton down.  He got in the car with no problem.  Once we got to the blood work office he was not happy.  He just started crying “no hurt, no hurt”. It was so sad.  After the blood work we stopped and got breakfast at waffle house, to go of course.  Kohlton was a happy boy eating his bacon and blue berry waffle!  Mrs. Victoria and Kason stayed here while Kohlton and I went to Nemours.  Kohlton got to see his favorite doctor, Dr. Brown.  Kohlton did great at chemo, no cries or any whimper.  Tommy couldn’t be there so I was afraid Kohlton was going to cry the whole time instead he said “Oh look buddy’s juice”.  We call his port buddy and the chemo/saline/heparin is his juice.  He did awesome!  Kohlton did great today.  Now that I have told you all about the day, it’s time to tell you all about the doctors appointment.  When Dr. Brown started talking about Kohltons blood work, she usually starts off by “well his blood counts look great” and then tells us all the results.  Today was different.  As soon as she started talking I felt something was off.  Kohlton’s blood counts are not terrible but are scary.  Dr. Brown lowered his chemo to give his blood counts time to get higher.  Ok, so this is what it is.  His neutrophils level should be between 3.0-6.0 that’s 3000-6000, Kohltons is at 0.5 which means 500. Once this count gets under 0.5/500 if he gets a fever he will automatically be admitted into the hospital.  If it goes under 0.5/500, he can have very few to no visitors.  One of the top side effects of the type of chemotherapy he takes is to lower his blood counts.  So, this is very scary to me.  So, if I could ask for more prayers, please everyone pray for his counts to go back up and for this disease to go away and never come back!  Please pray for all of us.  Thank you all for everything, we really appreciate all you do!

Such a handsome boy!