We had Kohlton’s ENT appointment today. We got there about 40 minutes early, just to
be safe and have plenty of time to fill out paperwork. We ended up being taken back to the room and
waiting almost an hour after his appointment time for the doctor. Tommy and I were pretty frustrated. We kept trading Kohlton and Kason back and
forth. Once the doctor came in, he
looked in Kohlton’s ears and said he would need to have him sedated to be able
to tell us for sure what was in his ears.
Tommy and I felt as though this appointment was a waste of time. They knew Kohlton was 2 ½ and would not sit
there to let them put instruments in his ears.
So, our questions were not answered today. I think that’s what we are more frustrated
about. We thought we would be finding
out if the lesions in his ear were part of the histiocytosis or if it was a Cholesteatoma. So as of right now we have no idea if he will need a 4 hour surgery to
remove the Cholesteatoma or if he will need the second chemo during phase
three. The doctor’s office will be
calling us to let us know what day Kohlton will be sedated for them to look
around in there. We don’t want him to be
sedated again but we do want answers. As
soon as we know something I will let you all know. Kohlton is feeling great today. His friend came over to visit him. Kohlton had a good time with BrayBray and is
passed out right now from playing so hard.
I like times like that, when Kohlton can feel and play somewhat
normal. Tomorrow we get the helmet
measured for it to be decorated. I am so
excited to see it all done up for him. I
can’t wait to see his smile when it’s finished.
I’ll have to take a picture of his smile and put it on here for all of
you to see. Thank you everyone for all
the prayers. Please keep them coming!
give him and his brother a big hug from Ms Sandy:) his friends at Teddybearlane miss them and are thinking about him:)
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