Kohlton and I started the day like every Monday, we went to
Sacred in Pace for blood work. When we
got there I specifically asked for Mrs. Bonnie.
She was the first lady that drew his blood and knew how to handle
Kohlton better. Blood work went
well. Kohlton did cry and try to climb
away but I think he’s starting to know what’s about to happen. As soon as we leave the house without his
brother, he knows its chemo day. He starts
crying as we leave. It breaks my
heart. We went home after blood work for
about two hours to play with Kason and Mrs. Victoria. At noon we started to head to Nemours for
Kohlton’s doctor appointment and then to head to his chemo. Kohlton got a surprise.
Tommy was able to be there a little
longer and was even able to go to the infusion center with us for a bit. We saw
Dr. Parmley this time. I think Kohlton
was a little upset he didn’t get to see his girl, Dr. Brown, Ha ha. Dr. Parmley came in and said Kohlton’s labs
looked good. He scheduled Kohlton’s first
round of check-up scans for Friday. Friday,
Kohlton will be having a full body x-ray and he will also be sedated for an MRI
of the skull. The following Monday we
will get the results. This Monday, the
20th, we will start phase two of chemo and discuss the scans. What we will be discussing is if the chemo
has helped and by how much it has helped.
We will also talk about the holes in his skull. The scans will show if the holes in his skull
are replenishing themselves. If they
have not grown enough for Dr. Parmley’s liking, he is going to schedule an appointment
for Kohlton to see a neurosurgeon. Hopefully
we don’t have to do that. If we do,
there are three options the neurosurgeon will decide on. Here they are, 1) he can go in and shave a
little of skull around the holes to help them start growing back, 2) He can put
metal plates in, or 3) radiation. Dr.
Parmley doesn’t want or think the neurosurgeon will decide on number 3 but he
did want to let us know that it is an option.
So these scans on Friday determine a lot for us. We pray they see the bones growing so Kohlton
doesn’t have to go through anymore.
After the doctor appointment we went up to the infusion center for
chemo. There we got the same nurse from
last week. She started off by saying, “you
guys look familiar, have I met you before?” and she was not joking. It all went well. There was another nurse who came in and
helped hold Kohlton with me. I
appreciated that so much. It helps a lot
to have someone help me so I can love on him.
All in all the day went pretty good considering everything we had to
do. Kohlton has had some side effects
still. So far he has quit the chills and
sweats. He still has diarrhea and sometimes
constipation. He is doing great. He’s acting like a little 2 ½ year old boy,
running his momma and dada wild! We
appreciate you all for the prayers and for everything else you all have or are
still doing for us. Thank you all so
very much! Please continue to pray for
all of us and for the results of the scans to be amazing, for there to be no
more histiocytosis. A friend of mine did
tell me today that what he has is also called “Ghost Cancer”, sounds scary. I know
for us, it is scary but WE ARE GOING TO BEAT THIS! Thank you all again! We love you all!
Kohlton and Kason have had an amazing Valentine’s Day. We were able to get them something small and
they are in love with their gifts. Tommy
and I have enjoyed watching them play. Please feel free to leave a commentfor Kohlton, I'll read them to him!
Mrs. Oria sure does love her some KOHLTON!!! :)
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