Fun, sun, and then chemo. . .

We’ve had a great time relaxing between Kohlton’s doctors’ visits.  We got to go to the bike trail in Milton to ride bikes, to Aunt Diann’s swimming pool to go swim, Kohlton and I had a date night with Aunt Laurie and BrayBray, we even got to go to BrayBray birthday party for a little bit, and so much more.  We have had a blast.  Here are some pictures.

Kason at the bike trail.  We have some "styling" boys!

Kohlton cheesing it up!

Can you tell they have fun together? 

And Kohlton is pooped from biking and swimming.

Ms. Tia and Kohlton on the slumber party.

This is blurry, but it momma and son date night.  Kason is too young right now, don't worry I'll be doing it with him too.  It was nice to have one on one time.

Did Kason like the cupcake?  He ate the entire thing! 



Even though we were enjoying our time off it went by too fast.  Monday came too soon.  We went for blood work in the am.  We were able to go to the Pace Sacred which was nice not having to drive all the way to Pensacola.  The day started off dragging, meaning it took the very rude check in lady about an hour to find Kohlton’s standing orders for blood work.  I just kept thinking to myself, Kohlton has to get pricked later on, this is nothing.  So, we went to get his blood drawn.  Well, nurse “J” from last time blew his vein in his arm.  Hopefully it’ll heal quickly.  It’s been three weeks since she drew blood in that arm but so far it’s not healed.  I’m not really sure how long it takes, but I’m praying it heals quickly and that the other one doesn’t get blown, if the other gets blown and it hasn’t healed yet then they will find other areas to draw his blood.  He will NOT be okay with that, and I don’t want him to have to go through anything else.  After the blood work, we met Mrs. Tia for lunch.  She also took Kohlton on a little shopping spree.  She got him some cars and Kason a present too.  It was nice seeing her before she left Tuesday to go back home. 

On to the Doctors visit and chemo, we saw Dr. Schwartz.  He answered most of my questions.  The bump on Kohlton’s head is still there and a little bigger.  Because Kohlton gets scans so often, Dr. Schwartz wants to wait a little bit before doing x-rays/scans again.  I’m really nervous about that, but the bump looks/feels nothing like the others, so I’m praying it’s just bone wax trying to get out or scar tissue.  After seeing Doctor Schwartz we headed to see nurse ”A“ at the infusion center.  We love nurse “A” but because of what happened I won’t put her name on here.  Okay, so everything was going great.  We even had the supervisor of the infusion center come in and talk with me about everything that happened with nurse “J”.  He seemed like he was all for Kohlton being taken care of and seemed to understand it all.  Boy, was that a bunch of bull!  Nurse “A” came in and said we are going to start chemo now.  I nodded okay and started taking Kohlton’s shirt off.  She then opened the door and said “Can we call “E” the child life specialist up here so we can get started?”  I said “what?”  While I’m trying to remain calm she starts saying “well since Kohlton gets so anxious and starts to fight, “E” is going to come and help show him breathing techniques to help him get through this” all while she looked at me with this crazy, this is bologna look.  I lost it!  I didn’t lose it on her; I lost it on the whole idea.  I looked at her and asked “you’ve had Kohlton about five times now, has he ever been hostile with/to you?”  She said “no never”.  Turns out the last nurse because of my complaints, is saying Kohlton is a hostile child.  THIS IS BULL C-R-A-P!  When we first started this whole thing, he fought a little at the beginning, but nothing we couldn’t hold him for.  Now, Kohlton sits in my lap, fusses a little when they clean his port area and stays pretty still during the entire thing.  He even says, “Oh look, its buddy’s juice.  He’s thirsty.”  Anyone can ask any of his other nurses; they all say he’s a great patient.  Anyways, I looked at her and pretty much this sums up what I said,

I am not about to have some strange lady that he has never met before come in here and try to show him breathing techniques.  He is already hesitant at any change in his appointments.  Of course he’s going to freak out with this chick coming in here, all in his face telling him how to breathe.  It is NOT my son that is the problem, it is the nurse!  I am not going to entertain this idea by letting this lady come in here.  My two and a half year old son that is going through chemo is NOT the problem!  NURSE “J” is!  So, hopefully you all get the jest of it.  I didn’t say it this nice but I tried to remain as calm as I could for Kohlton.  Again, I admit to losing it but I will NOT let some thirty years old woman that has never been good with my son blame my son.  I am his advocate and will not let anyone hurt him! 

Nurse “A” went ahead and did the chemo.  She completely agreed with me and thought the whole thing was ridiculous.  She said “Kohlton is great with everything”.  She even mentioned the only time he even fusses is when she cleans his port.  Other than that, Kohlton is doing okay from chemo.  He is a little more tired but he’s not hurting. 

On Tuesday we had dinner at the Schreiber’s house.  This is the family that has Brian, the five year old we met with LCH.  Dinner was great.  The boys got to play and realize there is another child like them.   Carrie and I got to talk about it all and I got to ask for some advice on things while Tommy and Fred got to get to know each other.  It was so nice to talk with another family going through this.  Thank you for having us over! 

Brian and Kohlton hanging out.  They are so sweet!



Kohlton has some surprise visitors coming.  My Dad and his wife are coming back to visit, along with Kohlton’s great grandma Lou, great grandpa Jimmy, and great uncle Mitch.  We are so excited!  I can’t wait for all of the catching up.  Kason turns one in a little over a week, and they both get to know my Dad’s side of the family.  We can’t wait!  I’ll post plenty of pictures after the visit.

Thank you everyone for all your support, for all the prayers, and so much more!  Please keep the prayers coming!  We appreciate them more than you could know!  Thank you, thank you, and thank you!