Phase one completed, on to Phase two.......

Kohlton and I started the day like every Monday, we went to Sacred in Pace for blood work.  When we got there I specifically asked for Mrs. Bonnie.  She was the first lady that drew his blood and knew how to handle Kohlton better.  Blood work went well.  Kohlton did cry and try to climb away but I think he’s starting to know what’s about to happen.  As soon as we leave the house without his brother, he knows its chemo day.  He starts crying as we leave.  It breaks my heart.  We went home after blood work for about two hours to play with Kason and Mrs. Victoria.  At noon we started to head to Nemours for Kohlton’s doctor appointment and then to head to his chemo. Kohlton got a surprise.  Tommy was able to be there a little longer and was even able to go to the infusion center with us for a bit. We saw Dr. Parmley this time.  I think Kohlton was a little upset he didn’t get to see his girl, Dr. Brown, Ha ha.  Dr. Parmley came in and said Kohlton’s labs looked good.  He scheduled Kohlton’s first round of check-up scans for Friday.  Friday, Kohlton will be having a full body x-ray and he will also be sedated for an MRI of the skull.  The following Monday we will get the results.  This Monday, the 20^th, we will start phase two of chemo and discuss the scans.  What we will be discussing is if the chemo has helped and by how much it has helped.  We will also talk about the holes in his skull.  The scans will show if the holes in his skull are replenishing themselves.  If they have not grown enough for Dr. Parmley’s liking, he is going to schedule an appointment for Kohlton to see a neurosurgeon.  Hopefully we don’t have to do that.  If we do, there are three options the neurosurgeon will decide on.  Here they are, 1) he can go in and shave a little of skull around the holes to help them start growing back, 2) He can put metal plates in, or 3) radiation.  Dr. Parmley doesn’t want or think the neurosurgeon will decide on number 3 but he did want to let us know that it is an option.  So these scans on Friday determine a lot for us.  We pray they see the bones growing so Kohlton doesn’t have to go through anymore.  After the doctor appointment we went up to the infusion center for chemo.  There we got the same nurse from last week.  She started off by saying, “you guys look familiar, have I met you before?” and she was not joking.  It all went well.  There was another nurse who came in and helped hold Kohlton with me.  I appreciated that so much.  It helps a lot to have someone help me so I can love on him.  All in all the day went pretty good considering everything we had to do.  Kohlton has had some side effects still.  So far he has quit the chills and sweats.  He still has diarrhea and sometimes constipation.  He is doing great.  He’s acting like a little 2 ½ year old boy, running his momma and dada wild!  We appreciate you all for the prayers and for everything else you all have or are still doing for us.  Thank you all so very much!  Please continue to pray for all of us and for the results of the scans to be amazing, for there to be no more histiocytosis.  A friend of mine did tell me today that what he has is also called “Ghost Cancer”, sounds scary.   I know for us, it is scary but WE ARE GOING TO BEAT THIS!  Thank you all again!  We love you all!

Kohlton and Kason have had an amazing Valentine’s Day.  We were able to get them something small and they are in love with their gifts.  Tommy and I have enjoyed watching them play.

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