We started the day with blood work at Sacred in Pace. We had a different guy, not Mrs. Bonnie. He was nice but still didn’t know how to work
with little ones. (I’m not trying to say
they don’t know how to do their job, I’m just saying maybe they shouldn’t be
taking little ones blood.) Kohlton cried
the entire time and all the guy would say was “stay still!” I was not cool with
him practically yelling at my child telling him to stay still. How is a two year old supposed to stay still
for that? He was pretty still; he would
jerk his arm back that’s about all. He
ended up being stuck in the arm and then a finger prick to finish it. The guy couldn’t get blood out of the
arm. We went home and had some fun with
Mrs. Victoria; she was watching bubby (Kason) while we were gone. At around noon we headed on up to the Nemours
Clinic for our appointment. Kohlton was
asleep until, Dr. Brown came in to the room.
He woke right up for her. I think he’s got a crush on her! As soon as she came in she gave Kohlton her
badge, it has a miniature cow on it that Kohlton likes to play with. The appointment went well. Kohlton’s blood counts look good she said. Tommy was able to be there, but he’s going to
schedule more time off next time to be there longer. Kohlton and I love seeing him there, but we understand
he has to work. We ended up getting a
stomach x-ray because Kohlton keeps saying his belly hurts. We haven’t heard anything yet so I’m assuming
it looked fine. Kohlton did well for the
x-ray. He cried but overall did great. He didn’t try to get away. He just laid there like a big boy. I am so proud of him! After the x-ray, we headed up to the infusion
center. The check in lady is getting
nicer. Once we got back to the room, the
nurses brought Kohlton some graham crackers and a juice cup. He kept asking for popcorn chicken, from Wal-Mart. The days I work, I go and get him some. He loves them! Chemo went better this time. I was able to hold and comfort him while
another nurse held his legs and arms still.
It was nice being able to talk to him and calm him down through it. I felt like his momma again and not the mean
wicked witch. Hoorah! Other than waiting for the chemo, the treatment
went pretty quickly. When we got home,
Kohlton got to see his bubby and was so excited to play with him. Aunt Laurie and BrayBray came over to
surprise Kohlton with some popcorn chicken.
I think he loves them even more now.
The day went pretty good.
Kohlton started off not feeling the best but by the end of the day he
was 100%. I feel it was a good day
emotionally too. Kohlton and I both didn’t
cry much and I think we are starting to get used to this routine. Hopefully the only thing that changes is not
having to wait an hour in the room for the chemo to get there. They won’t mix it till we check in at the infusion
center, it takes 30 minutes to mix it and about another 30 for them to check us
in and go get it. We’re all doing pretty
well. We start tapering Kohlton off his
steroids today. We are starting another
medicine for the yeast rash on his butt.
No other side effects so far other than diarrhea, the shivers, stomach
aches, and the sweats. We are so
thankful for all the prayers that are being sent. Please keep them coming. We are also thankful for all the dinners,
diapers, wipes, formula, and so much more that so many of you have donated. You will never know how much this is helping
us out. Thank you all again for
everything and please keep the prayers coming.
Kohlton has his ENT appointment Tuesday at 145. I will try to update after. This appointment will determine if Kohlton
will need a second chemo during phase three.
It will also tell us whether or not he will need surgery for his ears (to
remove the tumor behind his ear, Cholesteatoma).
Please pray he won’t need the second chemo or surgery. Thank you all so much!
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