Friday after work, I got to go back to the hospital to be
with Kohlton. Mrs. Tia came to watch
movies and hang out with us. Even in the
hospital we had so much fun!
Kohlton when we were waiting to see if we were going to be admitted.
Right after we got admitted he passed out. So sweet!
Another night, he looks like he's trying to suck Georges thumb. He he!
He's being silly!
Kohlton kept asking for Bubba and when Bubba comes, he falls asleep right before he got there. Kason even tried waking Kohlton up! It didn't work.
This is so cute I had to put it in here. Aunt Diann made a homemade highchair for Kason. She kept him every night we were in the hospital with Kohlton.
Saturday
morning we woke up and were told his blood counts were 540 and we might be able
to go home. They were waiting on results
from one more test. At about four we got
the results and were able to leave.
Kohlton got his very own wagon ride, right out of the hospital!
YAY! Home for Easter! Once we got home Kohlton wanted to go
straight out to his play set. We played
out there for what seemed like hours but it was really about only an hour. He is so happy to be at home!
He loves his play set!
When we woke up on Easter, Kohlton and Kason went straight for
their baskets. Aunt Laurie and Uncle Jarrell
went and got everything for us, in case we weren’t able to leave the hospital
in time. The baskets were ready for the
boys thanks to you guys! We appreciate
all you do for us!
Their baskets.
Kason is excited but doesn't really know what to do. So cute!
Oh, they found the ring pops. Yummy!
They are crawling champs!
Aunt Diann had a
lunch at her house. It was all outside
so we were able to go as long as nobody was sick. Aunt Diann had an Easter egg hunt for
him. He loved it! We all had a blast. Once we got home the boys napped and then the Flanders crew
came over. We got to do our very own egg
hunt for Kohlton and Brayden. Kason and
Emma are a little small but next year it will be four little ones running
around. It’s hard to believe that. Kohlton and Brayden had blast. They ran around for a while finding eggs. Laurie and I hid the eggs out in the open so
it was easy for the boys to find them.
Over all we had a great day. We
are so thankful to be home.
Kohlton and Brayden trying to stay still. So cute!
And he's off! Look at how tiny he looks running out there.
He's trying to carry all of them himself.
Such a good boy sharing his easter eggs with his bubba.
On Monday I called the doctor to see if we needed to do
blood work and anything else. They wanted
us to do the usual Monday. So, Mrs. Tia
came over and we headed to Pensacola to do the blood work. (The sacred in Pace
no longer has a tech to do the blood work, so we’ve ended up waiting for it to
be delivered to Pensacola and the blood work done there. So we figured we would just go there instead.) Kohlton got to see Mrs. Chris and Mrs. Mari
this morning. They did his blood
work. He absolutely loves them. He barely even fought them when they did his
blood work. I might have to make that
drive every time then. Anything to make
his chemo days go a little easier for him, I so will do it. We headed home for a bit and then back to Sacred
for the appointment with Doctor Parmley.
Kohltons counts were high enough to do his chemo, which means now we get
to go every three weeks. Yay! He did pretty well considering in the
hospital he wouldn’t let anyone touch his port.
I am so proud of him! He is such
a tough little cookie!
Kohlton and Mrs. Chris. He loves her so much!
Kohlton and Mrs. Mari. He loves her so much too!
On a sad note, the infusion center is being moved yet again! Kohlton will no longer have his favorite
nurses doing his chemo and now blood work.
We will be in the Nemours center but with new nurses and new
everything. I don’t see his next chemo
going the easily. I don’t understand the
switching of places. I thought this was
supposed to be for the children and what my child needs is a familiar face and
space. The new area I have been told
will not have many toys and will have chairs with curtains around them. Basically like the adult infusion center but
for my 2 and a half year old. I’m not a
happy camper. They called me to get my
opinion about all of this and didn’t even take it. I know it came down to who had most votes on
each side but we are very disappointed.
Poor Kohlton is going to be a mess next appointment. We will still go down stairs to visit Mrs.
Chris and Mrs. Mari.
Thank you all for everything you all have done! We appreciate all of it! Please keep the prayers coming!
Thank you to whoever sent Master Kohlton James the Easter
card. When we got home Saturday, I
checked the mail and there was a card addressed to Master Kohlton James. Once we opened it the card said To Master
Kohlton, Hope you and your family are blessed this Easter! No signature of who sent it. Inside it was $170.00 cash. You will never know how much this has helped. We are so thankful for your kindness and
generosity! Thank you from the bottom of
our hearts!
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