Thursday, April 12, 2012

Yay! We got to go home!


Friday after work, I got to go back to the hospital to be with Kohlton.  Mrs. Tia came to watch movies and hang out with us.  Even in the hospital we had so much fun! 

Kohlton when we were waiting to see if we were going to be admitted.


Right after we got admitted he passed out.  So sweet!


Another night, he looks like he's trying to suck Georges thumb.  He he!

He's being silly!


Kohlton kept asking for Bubba and when Bubba comes, he falls asleep right before he got there.  Kason even tried waking Kohlton up!  It didn't work. 


This is so cute I had to put it in here.  Aunt Diann made a homemade highchair for Kason.  She kept him every night we were in the hospital with Kohlton. 

Saturday morning we woke up and were told his blood counts were 540 and we might be able to go home.  They were waiting on results from one more test.  At about four we got the results and were able to leave. 

Kohlton got his very own wagon ride, right out of the hospital! 

YAY!  Home for Easter!  Once we got home Kohlton wanted to go straight out to his play set.  We played out there for what seemed like hours but it was really about only an hour.  He is so happy to be at home! 

He loves his play set!



When we woke up on Easter, Kohlton and Kason went straight for their baskets.  Aunt Laurie and Uncle Jarrell went and got everything for us, in case we weren’t able to leave the hospital in time.  The baskets were ready for the boys thanks to you guys!  We appreciate all you do for us!

Their baskets.


Kason is excited but doesn't really know what to do.  So cute!


Oh, they found the ring pops.  Yummy!


They are crawling champs! 

 Aunt Diann had a lunch at her house.  It was all outside so we were able to go as long as nobody was sick.  Aunt Diann had an Easter egg hunt for him.  He loved it!  We all had a blast.  Once we got home the boys napped and then the Flanders crew came over.  We got to do our very own egg hunt for Kohlton and Brayden.  Kason and Emma are a little small but next year it will be four little ones running around.  It’s hard to believe that.  Kohlton and Brayden had blast.  They ran around for a while finding eggs.  Laurie and I hid the eggs out in the open so it was easy for the boys to find them.   Over all we had a great day.  We are so thankful to be home. 

Kohlton and Brayden trying to stay still.  So cute!


And he's off!  Look at how tiny he looks running out there. 


He's trying to carry all of them himself.


Such a good boy sharing his easter eggs with his bubba. 

On Monday I called the doctor to see if we needed to do blood work and anything else.  They wanted us to do the usual Monday.  So, Mrs. Tia came over and we headed to Pensacola to do the blood work. (The sacred in Pace no longer has a tech to do the blood work, so we’ve ended up waiting for it to be delivered to Pensacola and the blood work done there.  So we figured we would just go there instead.)  Kohlton got to see Mrs. Chris and Mrs. Mari this morning.  They did his blood work.  He absolutely loves them.  He barely even fought them when they did his blood work.  I might have to make that drive every time then.  Anything to make his chemo days go a little easier for him, I so will do it.  We headed home for a bit and then back to Sacred for the appointment with Doctor Parmley.  Kohltons counts were high enough to do his chemo, which means now we get to go every three weeks.  Yay!  He did pretty well considering in the hospital he wouldn’t let anyone touch his port.  I am so proud of him!  He is such a tough little cookie! 

Kohlton and Mrs. Chris.  He loves her so much!


Kohlton and Mrs. Mari.  He loves her so much too! 

On a sad note, the infusion center is being moved yet again!  Kohlton will no longer have his favorite nurses doing his chemo and now blood work.  We will be in the Nemours center but with new nurses and new everything.  I don’t see his next chemo going the easily.  I don’t understand the switching of places.  I thought this was supposed to be for the children and what my child needs is a familiar face and space.  The new area I have been told will not have many toys and will have chairs with curtains around them.   Basically like the adult infusion center but for my 2 and a half year old.  I’m not a happy camper.  They called me to get my opinion about all of this and didn’t even take it.  I know it came down to who had most votes on each side but we are very disappointed.  Poor Kohlton is going to be a mess next appointment.  We will still go down stairs to visit Mrs. Chris and Mrs. Mari. 
Thank you all for everything you all have done!  We appreciate all of it!  Please keep the prayers coming!

Thank you to whoever sent Master Kohlton James the Easter card.  When we got home Saturday, I checked the mail and there was a card addressed to Master Kohlton James.  Once we opened it the card said To Master Kohlton, Hope you and your family are blessed this Easter!  No signature of who sent it.  Inside it was $170.00 cash.  You will never know how much this has helped.  We are so thankful for your kindness and generosity!  Thank you from the bottom of our hearts!

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