Some news. . .

Kohlton had chemo yesterday, well,  we'll let him tell you.....

 



It has been an amazing day!  All I can do is smile!  I will try to get on later to post more info but I couldn't help but share this amazing news!  Please keep the prayers coming!  Kohlton will have to finish up his treatment plan and continue with chemo.  Please pray he stays in remission so that in five years he will be considered "cancer free"!  Please also pray he will continue to do well with his treatments.  Thank you all so much for all of your prayers! 

Need family pics, A professional photographer fundraiser. . .

Before we had Kason we signed up for the baby plan with Jessica Whittle Photography.  She is an amazing lady.  Shes been doing all of Kason's photos still and now she is doing a fundraiser to help us!  Here is the info. . .

Jessica Whittle/Kohlton James fundraiser

I hope I did that right.  Please look and see if you would like to do this.  I'm putting this on here because people always ask about fundraiser for us and because she rocks, shes an amazing photographer and you can NOT beat the price shes doing it for!  Thank you to everyone who is helping out with this!  We love you all and appreciate you all so much!

Enjoying the break. . .

Ok, first of all we have had some good news.  Kason's blood work came back great.  Yay!  Also, Kohlton's scans came back great as well.  The doctor says his "lesions"(yes they are now called lesions, small now) are shrinking or staying the same size.  At first I was kinda bummed that some were staying the same but after talking to the doctor, he says it could be because of scar tissue, he also said no growth is great news.  So, I'm going with that.  So, we have had great news so far this month.

 Counts were good so cookie time is was.  Yay!

We have gotten to visit with some friends and family while on our break.  We absolutely love seeing our friends and family.  It helps us not think about everything that is going on as much.  Our family and friends are great distracters.  ;-)

Uncle Josh with his hands full.  Kohlton, Kason, Karisa, and Kayden with Uncle Joshy.

 The boys and their buddy Carson.  Sweet boys!

 Kohlton and his Mrs. ReeRee.

Kason and his lady.  He he!

Our church did a bake sale for us, all by donation.  So many people baked goods and so many bought them.  We are very thankful for the help.  I was shocked at how much they raised for us.  It will help so much!  Thank you all so much.  We are so thankful to have found such an amazing church to be part of our family!  We love you all and appreciate everyone of you!

This is the sign they made for the bake sale.  It's so cute!  I stole this off of someones facebook page.  Not sure if it was Jackie or Jessica.  Thank you and hope you don't mind I stole it.  Ha Ha.

Yay!  Kohlton is on the potty fully now!  Yay!  We are all so proud of him and are so excited about not having to buy or clean as many diapers.  Not that much longer, only another year or so with bubba and his diapers.  ;-)

Kohlton and his new "unders".  So cute! 

Alrighty, so our break is coming to an end.  We have blood work on Sunday and then chemo on Monday.  The good thing is we get to see Dr. Parmley and chemo will be earlier in the morning this time.  We'll have to see how this new system goes with it being on two different days.  Please pray it goes smoothly,  that he doesn't have any side effects (short term/long term), and that it contiues to work.  Thank you all so much for all the prayers.  We really appreciate everything you all do for us!  Thank you so much! 

I would like to ask a favor, if everyone could also pray for Brian and for Molly.  They both have LCH and need all the prayers they can get.  As far as I know they are responding well to treatment but please keep them in your prayers.  The more the better!  Please keep their families in your prayers as well. 

Thank you everyone for everything you all do for us!  We apprecaite is all!  Please keep the prayers coming!  Thank you, thank you, thank you!







Happy/sad/proud momma moment.....

So today while Kohlton was getting his X-rays I had a happy/sad/proud mommy moment. I was so happy at how good he was being. He just laid there still as he could be. The tech even said she couldn't believe at how well he was doing.  She remembered him fussing a little and me having to hold his hands/arms still.  I was sad because he's had so many scans and other things to deal with. I was proud to see what a strong and courageous boy we have!! I am so honored to be his momma!! I love him and his bubba so much! Ok I admit I did cry a bit during the scans. I didn't let him see but I just got so emotional all of a sudden. It all sat in a bit more this time. Good thing we are over half way done in our year long treatment. Only ten more chemo treatments left. Pray that this is all he'll ever have to do and this will go into remission and my baby will be a heathy little champ! Can't wait for that day! So thankful to have all my family and friends to support us through this. Thank you all of you! You really have no idea how much it helps to have you all here for us and especially Kohlton! Thank you, thank you, and thank you!!  We love you all!

Long time, so sorry!

It has been a while since our last update.  I am so sorry.  Let’s see, what has been going on since the last update?  We had some family come to visit.  We all had a blast visiting.  I’m so glad we could have them all here.  Wish they could have stayed longer. 

 Tommy, Papa Jimmy, Grannie Lou, Kason, and I.

T.T, Kohlton, and pawpaw.

 Kohlton, Kason, and baby Van with their superman shirts that Aunt Paige got them.  Aren't they handsome?

 Mommy and her one year old, Kason.

 Kohlton and BrayBray playing Jake and the neverland pirates.  Ha ha!

PawPaw Mark and Kohlton.  Hurry back, pawpaw!

We have gone on some more bike rides, went bowling, seen two movies, a boat ride, and even celebrated Kason’s first birthday with a small get together and a photo shoot, and Kason has even started walking!  So much fun!  You can see the fun photos at www.Jessicawhittlephotography.com they are amazing!  She is amazing.  She gave us some cards to give to people with Kohltons blog address on them.  So sweet!

 Daddy and Kohlton.  So cute!

Sorry its blurry, but this is one side of the card Jessie made for us. So sweet!

Kohlton has had another chemo appointment.  He did great through the appointment.  He has had another side effect pop up.  He is now itching like crazy.  Sometimes, it looks as though he is trying to pull his skin off.  It’s so sad.  He has even asked me to take the spiders off his skin.  We have gone to the doctors and they say it is not part of the chemo, but it happened about two hours after chemo.  With his chemo the percentage of something like that happening was less than 1% of the people that were tested with it.  Poor guy!  He is also grinding his teeth more and more after each chemo appointment.  I hate that he is having these side effects.  Please pray they go away!  We now have additional medicine for the itching and grinding.  Poor guy has more meds.  Kohlton has scans this week to see about that bump on his head, please pray it is only scar tissue or bone wax and not the LCH.  I will upload the video I recorded of him getting his chemo next post.  I have to figure out how to transfer it over and put it on here.  Then you all can be the judge on if his is hostile or not.  (Info on that in the last post.)

Kason and Kohlton both have blood work on the 2^nd of July.  Kohlton’s blood work is for chemo that day.  Kason’s blood work is for his routine checkup, we are still worried.  At least, we will get an answer on whether Kason could have LCH.  Please pray he does not.  Because LCH is so rare, they aren’t 100% sure on if it is hereditary or genetic, or pretty much anything else relating to that.  Please keep Kohlton and Kason is your prayers.  WE REALLY APPRECIATE ALL THE PRAYERS WE CAN GET.  THANK YOU TO EVERYONE WHO HAS BEEN PRAYING FOR US, BABYSITTING FOR US TO HAVE SOME ALONE TIME, BRINGING MEALS, MONETARY DONATIONS, AND SO MUCH MORE.  THANK YOU, THANK YOU, AND THANK YOU!  PLEASE KEEP THEM COMING! 

YAY KOHLTON!  HE IS ALMOST POTTY TRAINED!  He has been going potty on the potty for about two weeks now; well I started it all about two weeks ago.  He has been doing great!  We have had a few accidents but he is very close to being accident free.  He even goes all night with no wet diapers. Yay!  I’m so proud of him! Please if you’d like, leave him a comment about this and I’ll share it with him!  I’m sure he’d love to have some thumbs up comments.   Thanks again everyone!

 The whole family!  The Fogartys, James', and Watfords.

 Mrs. Tia sent the boys super brother shirts.  Isn't that sweet?!

Mrs. Tia's sister, Ms. Beth, she is amazing.  She is watching the boys now. Both ladies are amazing people and love my babies just as if they were their own.  We love them tons!

 Kohlton and his gorgeous cousin Ella.  We miss her and her family so much already!

 Kason and Kohlton about to bowl.  They are so happy.  Kason rolled the only strike.  Ha ha!

Our birthday boy!  One year old, time sure does fly!  Look at his little teeth!  So handsome!

Thank you all again!  I will update sooner this time, promise!

Fun, sun, and then chemo. . .

We’ve had a great time relaxing between Kohlton’s doctors’ visits.  We got to go to the bike trail in Milton to ride bikes, to Aunt Diann’s swimming pool to go swim, Kohlton and I had a date night with Aunt Laurie and BrayBray, we even got to go to BrayBray birthday party for a little bit, and so much more.  We have had a blast.  Here are some pictures.

Kason at the bike trail.  We have some "styling" boys!

Kohlton cheesing it up!

Can you tell they have fun together? 

And Kohlton is pooped from biking and swimming.

Ms. Tia and Kohlton on the slumber party.

This is blurry, but it momma and son date night.  Kason is too young right now, don't worry I'll be doing it with him too.  It was nice to have one on one time.

Did Kason like the cupcake?  He ate the entire thing! 



Even though we were enjoying our time off it went by too fast.  Monday came too soon.  We went for blood work in the am.  We were able to go to the Pace Sacred which was nice not having to drive all the way to Pensacola.  The day started off dragging, meaning it took the very rude check in lady about an hour to find Kohlton’s standing orders for blood work.  I just kept thinking to myself, Kohlton has to get pricked later on, this is nothing.  So, we went to get his blood drawn.  Well, nurse “J” from last time blew his vein in his arm.  Hopefully it’ll heal quickly.  It’s been three weeks since she drew blood in that arm but so far it’s not healed.  I’m not really sure how long it takes, but I’m praying it heals quickly and that the other one doesn’t get blown, if the other gets blown and it hasn’t healed yet then they will find other areas to draw his blood.  He will NOT be okay with that, and I don’t want him to have to go through anything else.  After the blood work, we met Mrs. Tia for lunch.  She also took Kohlton on a little shopping spree.  She got him some cars and Kason a present too.  It was nice seeing her before she left Tuesday to go back home. 

On to the Doctors visit and chemo, we saw Dr. Schwartz.  He answered most of my questions.  The bump on Kohlton’s head is still there and a little bigger.  Because Kohlton gets scans so often, Dr. Schwartz wants to wait a little bit before doing x-rays/scans again.  I’m really nervous about that, but the bump looks/feels nothing like the others, so I’m praying it’s just bone wax trying to get out or scar tissue.  After seeing Doctor Schwartz we headed to see nurse ”A“ at the infusion center.  We love nurse “A” but because of what happened I won’t put her name on here.  Okay, so everything was going great.  We even had the supervisor of the infusion center come in and talk with me about everything that happened with nurse “J”.  He seemed like he was all for Kohlton being taken care of and seemed to understand it all.  Boy, was that a bunch of bull!  Nurse “A” came in and said we are going to start chemo now.  I nodded okay and started taking Kohlton’s shirt off.  She then opened the door and said “Can we call “E” the child life specialist up here so we can get started?”  I said “what?”  While I’m trying to remain calm she starts saying “well since Kohlton gets so anxious and starts to fight, “E” is going to come and help show him breathing techniques to help him get through this” all while she looked at me with this crazy, this is bologna look.  I lost it!  I didn’t lose it on her; I lost it on the whole idea.  I looked at her and asked “you’ve had Kohlton about five times now, has he ever been hostile with/to you?”  She said “no never”.  Turns out the last nurse because of my complaints, is saying Kohlton is a hostile child.  THIS IS BULL C-R-A-P!  When we first started this whole thing, he fought a little at the beginning, but nothing we couldn’t hold him for.  Now, Kohlton sits in my lap, fusses a little when they clean his port area and stays pretty still during the entire thing.  He even says, “Oh look, its buddy’s juice.  He’s thirsty.”  Anyone can ask any of his other nurses; they all say he’s a great patient.  Anyways, I looked at her and pretty much this sums up what I said,

I am not about to have some strange lady that he has never met before come in here and try to show him breathing techniques.  He is already hesitant at any change in his appointments.  Of course he’s going to freak out with this chick coming in here, all in his face telling him how to breathe.  It is NOT my son that is the problem, it is the nurse!  I am not going to entertain this idea by letting this lady come in here.  My two and a half year old son that is going through chemo is NOT the problem!  NURSE “J” is!  So, hopefully you all get the jest of it.  I didn’t say it this nice but I tried to remain as calm as I could for Kohlton.  Again, I admit to losing it but I will NOT let some thirty years old woman that has never been good with my son blame my son.  I am his advocate and will not let anyone hurt him! 

Nurse “A” went ahead and did the chemo.  She completely agreed with me and thought the whole thing was ridiculous.  She said “Kohlton is great with everything”.  She even mentioned the only time he even fusses is when she cleans his port.  Other than that, Kohlton is doing okay from chemo.  He is a little more tired but he’s not hurting. 

On Tuesday we had dinner at the Schreiber’s house.  This is the family that has Brian, the five year old we met with LCH.  Dinner was great.  The boys got to play and realize there is another child like them.   Carrie and I got to talk about it all and I got to ask for some advice on things while Tommy and Fred got to get to know each other.  It was so nice to talk with another family going through this.  Thank you for having us over! 

Brian and Kohlton hanging out.  They are so sweet!



Kohlton has some surprise visitors coming.  My Dad and his wife are coming back to visit, along with Kohlton’s great grandma Lou, great grandpa Jimmy, and great uncle Mitch.  We are so excited!  I can’t wait for all of the catching up.  Kason turns one in a little over a week, and they both get to know my Dad’s side of the family.  We can’t wait!  I’ll post plenty of pictures after the visit.

Thank you everyone for all your support, for all the prayers, and so much more!  Please keep the prayers coming!  We appreciate them more than you could know!  Thank you, thank you, and thank you!

YAY! No Cholesteatoma!!

Hey everyone!  We have a bunch of people asking how they can help. Well here is one way you can help and get some amazing products for yourself.  If you love 31 products, my friend Carissa Hanger is doing a fundraiser for us; she is giving our family 25% of your purchase!! Please check out her page at http://www.mythirtyone.com/CarissaHanger/ and order under the party James Family. There are some really nice products! Please tell your family and friends!

Ok so here is the latest update.  Kason ended up with a virus.  Thankfully Kohlton has not gotten it.  But Kohlton has had a new side effect from his chemo.  He couldn’t really walk for about 30 minutes on one leg on Tuesday.  He hasn’t had that since but we will be talking with our doctor about it.  It’s still very scary even when you know what to watch for and it does happen.  Wednesday and Thursday went great.  On Friday we had to head to get blood work for Kohlton, to make sure his counts were good for surgery on Monday.  Thankfully the old pediatric infusion center got us in for his blood work, this way he didn’t have to meet another person.  Well, getting the blood didn’t go as smoothly as it usually does.  I’m assuming that what nurse “J” did to him on Monday scared him on Friday. He screamed like there was no tomorrow, and it was Mrs. Chris doing it.  I knew this was going to happen.  We are going to have to figure out a way to get him comfortable again.  Thanks nurse “J”.  (that was said sarcastically)  The good thing is his counts are great, well great for him! YAY!  So, Monday morning we headed for surgery.  The lady that checked us in was amazing.  She even gave curious George a medical bracelet too.  So sweet!

So sweet! 

Dr. Pennington said everything went well.  He did not see any scaring from any other surgery.  He did not see any sign of a Cholesteatoma.  Or any lesions or tumors!  YAY YAY YAY!  So excited about that!  Kohlton did great.  He even woke up ready to play, like nothing had even happened to him.  They did remove wax build up and we will have to use a wax softener to get it to come out more.  They said they removed what would be a large amount for an adult.  He is going to hear much better!  He’s already told me “maw maw, your really loud” twice today.  It’s pretty funny.  So, I’m trying to be quieter. 

So peaceful!



Please keep praying for Kohlton and all of us!  Thank you!

Some relief!

For all of you non-believers out there, this is for you!  Last night was one of the first nights I prayed for some financial relief with bills and so on, I went more in detail with God while praying but I’ll just let that be for us.  Any who, today at work God took care of us.  While I was busy working a young man by the name of Jonathon came in and asked for me.  One of the ladies I work with asked for a last name but he wouldn’t give it.  I was really busy so it took me about fifteen minutes to be able to talk to him.  Once I had a free moment I went and said “Hey Jonathon what can I do for you?”  He politely answered “I was told to give this to you.”  He handed me a white envelope with Kara James written on it.  I asked him what it was and who it was from.  He simply answered with “I was just told to give it to you” and walked out quickly so I couldn’t ask any more questions.  I opened the envelope.  It had a letter and cash in it.  The letter was perfectly written.  This is what it said.

Dear Kara,

I just wanted to let you know how much God loves you and so do we.  God loves you and he knew you before you were born and he will never leave you or forsake you.  You and your family are in our prayers and will stay, keep your eyes on Jesus and let your heart find rest and peace!

This is your hug and I love you from Jesus today!

I am so thankful to have a loving God!  Thank you God for answering this prayer of ours!    I know it’s not the last one you will answer; I know our baby will be healed!  Thank you God for sending this our way!  Thank you to Jonathon and whoever sent this to us.  We appreciate this more than you could know!  Thank you, thank you, and thank you!

Fun times and chemo again.....

Everything has been going great the last two weeks.  We had Dad and Priscilla visit on and off for about two weeks.  It was so nice to have company.  I get pretty lonely.  Tommy got us some bikes and the boys’ seats to go on them and even a child trailer to put them in, so I can take both the boys on a bike ride all by myself.  The weather is so nice.  We all enjoy the bike rides. 

The boys on our first bike ride with the tote!  So cute!

Sunday was BayBay’s birthday.  Laurie and Jarrell brought the blow up slide that they have.  They put it up here so that Kohlton could spend some time with BayBay.  Kohlton may not be able to go to his birthday party so it was very nice of them to do that.  BayBay and Kohlton had a blast! 



Happy birthday BayBay!

Trying to get them to say cheese!

This is priceless!  My baby is so happy!

Could this be love??  Baby Kason and baby Emma.

Yesterday was Kohlton’s chemo day.  We had to head to Pensacola for blood work in the am.  The Pace office still has no tech to do the blood work so, on to Pensacola we went.  I called to see where we needed to go in the Pensacola Sacred heart area, the last infusion center always had us come to them so Kohlton wouldn’t have to meet another person and be upset.  After I explained this to the new infusion center they told me ok come on up.  Once I got there it was a completely different story.  The nurse, we’ll say her name is “J” gave me this long speech about how she was doing me a favor by doing my sons blood work there, but for future blood work she would not do it, I would have to take him to the diagnostic center inside of Sacred.  This fired me up, I still remained calm and very nice to her, just ask Mrs. Tia.  She came with us and she even said “J” was very rude!  (By the way this “J” is the same nurse we had problems with last antibiotics and IV of fluids appointment and I asked for another nurse)  She also told me she was going to go ahead and access him so that way she wouldn’t have to later.  I told her, that Dr. Parmley told us never to do that, it’s too much to risk infection to the port.  She looked at me and said “well, I’ll check with the doctor but I’ve always done it that way, so I don’t know why he wouldn’t be okay with that”.  I simply said “Okay”, knowing if she came back and did that I would refuse.  She came back by saying “Dr. Schwartz said no because if his counts were not good then we’d have him accessed and I’d have to come back to take it out”.  I simply said “Okay”.  Once she started the needle work to get his blood, she did okay until the end.  At the end of it, you know when they pull the needle out and then put the cotton ball on it with pressure; well she decided she was going to leave the needle in while applying pressure.  Well, what do you think happened when she did that?  He started screaming hysterically and surprise he now has the biggest bruise he has ever had for blood work.  Ridiculous!  Ok now on to the doctors’ appointment, it went great.  Kohlton has a bump that showed up on his head about a week ago.  Dr. Schwartz looked at it, said it looked like a bite but he is not happy with it.  Told us he was going to keep a close eye on it.  If it’s just a bite it’ll go away, if it’s something else it’ll shrink with chemo but not really go away.  So, until next appointment we’re going to be pretty much on edge.  Kohlton really likes Dr. Schwartz now, he didn’t even cry while he checked him out.  Kohlton did so good.  (Proud momma!)  So all of us had time to waste until Kohlton’s blood work came back to do chemo.  WE grabbed some lunch and then headed back to Sacred.  I figured we could go see his favorite ladies, the FUN and LOVING old pediatric infusion center.  Mrs. Mari walked out and he just ran into her arms, same with Mrs. Chris.  They just love him and he loves them too.  We got to visit with them for about 5 or 10 minutes.  It was great.  He was so happy to see them.  After that we headed back to the other infusion center.  (By the way, I do not call them good and bad infusion centers anywhere near Kohltons ears.  I want him to make his own opinion and hopefully not be scared of them.)  Okay so we get back up there and right of the bat “J” says with a smirk on her face “okay we need the bed to swaddle him?”  I guess she saw the answer on my face, because before I could say anything she said “oh wait we use the recliner, and you hold him right?”  I was about to blow up at her, but thankfully my eyes showed her what I was about to say.  We went back to the room and waited about 45 minutes to an hour for the chemo to come up and her to get started.  This whole time she kept saying it’ll be here in about 5 minutes, and calling it vincristine and not vinblastine.  So, I had to keep looking at everything and correcting her.  I had to keep making sure it was the right paperwork and the right drug.  This entire time I kept saying “he takes vinblastine, not vincristine.  Which drug are you talking about?”  She would answer with “oh its vinblastine, I just keep overlooking it.” She would say that while laughing.  She ended up doing the chemo and we were able to leave.  I have already called the supervisor and left a message with her.  I cannot let my baby go through that again!  It’s almost like she took her time and was beyond rude to us.  She kept making me look through all the paperwork again.  Tell her all his surgeries, scans, and all that again.  It’s in the file is all I could think.             

We got home and everything is great so far.  No new side effects.  Kason is sick and has an appointment today at 130.  I hope whatever he has is over soon and that it is not contagious to Kohlton.  His bottom is so tore up.  He is still a happy baby as long as you change his diaper about every 30 minutes.  Poor guy!  I will let you all know how he is doing once we get back home. 

Kohlton has blood work on Friday to make sure his counts are good.  If they are good he will have his surgery on Monday for his ears.  I won’t know exactly what surgery it will be till Monday when they look inside them.  It might be just a cleaning of the inner ear or it might be the removal of a Cholesteatoma.  The ear cleaning takes about 20 minutes and the removal of the Cholesteatoma takes about 4 hours.  So we are on edge for that as well. 

Kohlton fell asleep while praying!  So sweet!

Please keep praying for Kohlton and all of us!  We appreciate everything all of you have been doing to help us!  Thank you, thank you, and thank you!  Please keep praying!

Hope this is a Nemours clinic free week!

Kohlton did great after his chemo on Monday the 9th.  That week my dad and his girlfriend came to visit.  We had so much fun!  We were hoping we wouldn't have to go back to the clinic till the 30th.  Well, Kohlton decided he wanted to scare us again.  (I'm just joking I'm not blaming him for anything.)  On Monday the 16th, Kohlton got a fever.  The fever was betweeen 101.7 and 103.1.  (I took it three different ways to be 100% sure)  On to Nemours we went.  He had to get blood work to check his counts and some IV antibiotics.  His blood work came back great! His counts were around 3000.  Great!  So, Dr. Schwartz told us to head home and if he got another fever to bring him back the next day for more antibiotics.  So, that night he did get a fever.  It was 102.2.  So the next day I called to get in.  Once we got there we were told more antibiotics and some fluids through the IV.  Kohlton wasn't drinking or eating now.  So, I was all for the fluids.  After seeing Dr. Schwartz we headed to the new infusion center.  (Which I hate!)  There's hardly any toys.  The TVs dont have remotes and for a 5'2" lady, I can't really turn it on or change the channel.  We were there from 1 to 6pm and it was very hard to entertain a 2 1/2 year old in a tiny room with no toys and no TV.  We did get the nice nurse though.  We are very happy about that.  The other nurse I am going to call and ask for her never to be on our case again.  When we first arrived she told me she was waiting for the room with a bed so she could wrap him up and then do everything.  I told her no your not, I hold him and he's fine.  She began to argue with me telling me Kohlton fights majorly so she is going to wrap him up.  I again told her no she was not going to do that and ruin everything Kohlton has gotten used to so far.  She then told me the only room she had available was the one with just a recliner, I said great thats what we sit in.  She was dumb founded.  Once she took us to the room, she then told me I needed to fill all the paperwork out since they moved to another floor.  I asked her if she still had my information she said yes and handed it to me.  I looked at her and said its the same and handed it back.  It was literally the paperwork I filled out at the beginning of all of this, my handwriting and everything.  So, why would I have to fill it out again, she has it right in her hand?  Ridiculous!  Well, we ended up getting Ashley instead after all of that.  Thank goodness!  If the other nurse would have came back to the room, I would have refused to let her touch Kohlton.  She knew nothing about him and insisted she knew everything.  To me that is a horrible nurse!  Kohlton had a great week after all of that.  He hasn't had anymore fevers or had to go back to the clinic.  Yay!  Hopefully this will be a fun week of no visits to the clinic.  Thank you everyone for everything you have done for us or are still doing for us.  Please keep praying Kohlton and all of us!

Yay! We got to go home!

Friday after work, I got to go back to the hospital to be with Kohlton.  Mrs. Tia came to watch movies and hang out with us.  Even in the hospital we had so much fun! 

Kohlton when we were waiting to see if we were going to be admitted.

Right after we got admitted he passed out.  So sweet!

Another night, he looks like he's trying to suck Georges thumb.  He he!

He's being silly!

Kohlton kept asking for Bubba and when Bubba comes, he falls asleep right before he got there.  Kason even tried waking Kohlton up!  It didn't work. 

This is so cute I had to put it in here.  Aunt Diann made a homemade highchair for Kason.  She kept him every night we were in the hospital with Kohlton. 

Saturday morning we woke up and were told his blood counts were 540 and we might be able to go home.  They were waiting on results from one more test.  At about four we got the results and were able to leave. 

Kohlton got his very own wagon ride, right out of the hospital! 

YAY!  Home for Easter!  Once we got home Kohlton wanted to go straight out to his play set.  We played out there for what seemed like hours but it was really about only an hour.  He is so happy to be at home! 

He loves his play set!

When we woke up on Easter, Kohlton and Kason went straight for their baskets.  Aunt Laurie and Uncle Jarrell went and got everything for us, in case we weren’t able to leave the hospital in time.  The baskets were ready for the boys thanks to you guys!  We appreciate all you do for us!

Their baskets.

Kason is excited but doesn't really know what to do.  So cute!

Oh, they found the ring pops.  Yummy!

They are crawling champs! 

 Aunt Diann had a lunch at her house.  It was all outside so we were able to go as long as nobody was sick.  Aunt Diann had an Easter egg hunt for him.  He loved it!  We all had a blast.  Once we got home the boys napped and then the Flanders crew came over.  We got to do our very own egg hunt for Kohlton and Brayden.  Kason and Emma are a little small but next year it will be four little ones running around.  It’s hard to believe that.  Kohlton and Brayden had blast.  They ran around for a while finding eggs.  Laurie and I hid the eggs out in the open so it was easy for the boys to find them.   Over all we had a great day.  We are so thankful to be home. 

Kohlton and Brayden trying to stay still.  So cute!

And he's off!  Look at how tiny he looks running out there. 

He's trying to carry all of them himself.

Such a good boy sharing his easter eggs with his bubba. 

On Monday I called the doctor to see if we needed to do blood work and anything else.  They wanted us to do the usual Monday.  So, Mrs. Tia came over and we headed to Pensacola to do the blood work. (The sacred in Pace no longer has a tech to do the blood work, so we’ve ended up waiting for it to be delivered to Pensacola and the blood work done there.  So we figured we would just go there instead.)  Kohlton got to see Mrs. Chris and Mrs. Mari this morning.  They did his blood work.  He absolutely loves them.  He barely even fought them when they did his blood work.  I might have to make that drive every time then.  Anything to make his chemo days go a little easier for him, I so will do it.  We headed home for a bit and then back to Sacred for the appointment with Doctor Parmley.  Kohltons counts were high enough to do his chemo, which means now we get to go every three weeks.  Yay!  He did pretty well considering in the hospital he wouldn’t let anyone touch his port.  I am so proud of him!  He is such a tough little cookie! 

Kohlton and Mrs. Chris.  He loves her so much!

Kohlton and Mrs. Mari.  He loves her so much too! 

On a sad note, the infusion center is being moved yet again!  Kohlton will no longer have his favorite nurses doing his chemo and now blood work.  We will be in the Nemours center but with new nurses and new everything.  I don’t see his next chemo going the easily.  I don’t understand the switching of places.  I thought this was supposed to be for the children and what my child needs is a familiar face and space.  The new area I have been told will not have many toys and will have chairs with curtains around them.   Basically like the adult infusion center but for my 2 and a half year old.  I’m not a happy camper.  They called me to get my opinion about all of this and didn’t even take it.  I know it came down to who had most votes on each side but we are very disappointed.  Poor Kohlton is going to be a mess next appointment.  We will still go down stairs to visit Mrs. Chris and Mrs. Mari. 

Thank you all for everything you all have done!  We appreciate all of it!  Please keep the prayers coming!

Thank you to whoever sent Master Kohlton James the Easter card.  When we got home Saturday, I checked the mail and there was a card addressed to Master Kohlton James.  Once we opened it the card said To Master Kohlton, Hope you and your family are blessed this Easter!  No signature of who sent it.  Inside it was $170.00 cash.  You will never know how much this has helped.  We are so thankful for your kindness and generosity!  Thank you from the bottom of our hearts!